This page has links to websites with information about support groups for parents affected by birth defects. We hope you find these sites helpful. Please remember we don't control or endorse the information given on these websites, nor do these websites endorse the information given here.
Genetic Alliance, Suite 404, 4301 Connecticut Avenue NW Washington, DC 20008-2369, Phone: 202-966-5557, Email: firstname.lastname@example.org
National Down Syndrome Congress, Suite 108, 30 Mansell Court Roswell, GA 30076, Phone (toll free): 800-232-6372 (NDSC) or phone: 770-604-9500, Email: email@example.com
National Down Syndrome Society, 8 E 41st Street, 8th Floor, New York, NY 10017, Phone: 800-221-4602, Email: firstname.lastname@example.org
National Organization for Rare Disorders (NORD) , 55 Kenosia Ave. Danbury, CT 06810, Phone (toll free): 800-999-6673 or phone: 203-744-0100
SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) , 2982 South Union St. Rochester, NY 14624
The Compassionate Friends, P.O. Box 700 Jenson Beach, FL 34957, Phone (toll free): 877-969-0010 or phone: 630-990-0010
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